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The Community-based palliative care nurse: A communication bridge between home and hospital.



I think one way that we can sort of optimize the relationship between the palliative care team especially the nursing side and team is just constant communication I always joke with them that I'm sorry that I'm bothering them but I just want to give them an update and generally the response I get as they laugh and they're like you're not bothering me and a lot of times if they haven't heard from the families if we've done if we've built that bridge and that relationship wealth or reach out to me and be like hey I just wanted to touch base with you before I reach out to the family what's going on or how are we doing have we not heard from them in a while because things are bad or because things are well how involved do you want us to be and now that I've been doing this for almost four years there are some relationships that I've gained that respect but I just keep sort of continuing to bother them and continuing to show up and we have that sort of communication bridge which I think can be really helpful to the families even if they don't know how much we communicate and some families don't and it's not that we're doing things behind their back it's just there everybody stable right now so we don't mean they don't mean to know that we have been constantly talking and prepping for the next conversation or whatever it's gonna be we're sort of protecting them and if I can answer the questions that don't they don't need to be asked I would rather do that for them rather than have the parents we voted and ruin whatever they're doing whether it's going to a school play or head getting ready for a vacation or just having a good day outside and so I think a lot of times it helps to with when they're inpatient or if I mean if sometimes I've sent them inpatient if it's their goals of care that are curative and we're not ready to have an end of a situation in the child is decompensating at home and I've done everything in my toolbox I'm sending them in and I will call their primary hospital or their primary team be like heads up so in so it's coming in this is why I sent them in this is what we tried at home this is what I'm concerned about and they almost always appreciate that and sometimes it does expedite the admission from the ER upstairs which families appreciate and because sitting in the yard never fun and so I think that communication bridge is really really important and inpatient providers aren't always used to doing that some are

Glenn Chapman

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