Information Retrieval for International Disability and Rehabilitation Research

>>JOANN STARKS: Good afternoon, everyone.
And thank you for joining the webcast today on Information Retrieval for International
Disability and Rehabilitation Research. Our presenters today are Dr. John Stone and Mr.
Dan Conley from the Center on International Rehabilitation Research Information and Exchange,
CIRRIE, based at the University at Buffalo. They will describe some of the goals and activities
of the CIRRIE project and will focus specifically on the features of the CIRRIE Database of
International Rehabilitation Research, and how to search and use the results. This is
the first of a series of webcasts designed to help to increase access to international
research and researchers. I’m your host, Joann Starks, and I’m with
the Center on Knowledge Translation for Disability and Rehabilitation Research, KTDRR, part of
the Disability Research to Practice program based at SEDL in Austin, Texas. The KTDRR
is funded by the National Institute on Disability and Rehabilitation Research. I’ll be moderating
today’s webcast. A reminder for all participants. There are
some materials accompanying today’s event that can be found on the web page advertising
this webcast. The presentation is available as a PowerPoint file as well as a text version. The slides on the computer screen are small,
so having the actual file or a print out could be helpful. If you have not downloaded the
materials yet, you can go back to your confirmation email and click on the title of today’s webcast.
Scroll down that page to “Download Materials.” Please remember, these materials are copyrighted
and you must contact our presenters to ask permission to use any of this information. If you have any questions during or after
the webcast, please feel free to send them to me at [email protected] Or you may contact
our presenters directly at the address that will be shown on the last slide. We would appreciate your feedback today by
filling out a very brief evaluation form after the webcast. I will remind you about this
at the end of today’s presentation. Now I would like to introduce our speakers.
John Stone, Ph.D., is the Director of the Center for International Rehabilitation Research
Information and Exchange. He is also a Clinical Associate Professor of Rehabilitation Science
at the University at Buffalo, State University of New York. In 1999, he founded the CIRRIE
project and conceptualized the CIRRIE Database of International Rehabilitation research in
collaboration with colleagues from the university’s Health Science Library. Also joining us today is Dan Conley, MLS,
who joined CIRRIE in 2006 after obtaining his masters degree in Library Science. He
has a background in web design and accessibility and has redesigned both the CIRRIE database
and website. I will now invite Dr. John Stone to begin
the presentation.>>JOHN STONE: Thank you very much Joann for
that kind introduction. It’s a pleasure to be collaborating with your group at SEDL once
again. This presentation today will discuss first the purpose of the CIRRIE database,
and we will then give an overview of some of its main features. After that we’ll go
into a more detailed explanation of how to use these features. The Center for International
Rehabilitation Research Information and Exchange is a Center funded by the National Institute
for Disability and Rehabilitation Research. And its mission is to facilitate the sharing
of information and expertise between Rehabilitation Researchers in the U.S. and those in other
countries. CIRRIE has a number of programs and activities
to further that mission, and they include a program of exchanges to support international
collaboration, an online encyclopedia an international encyclopedia of rehabilitation. We also conduct
conferences, symposia and workshops and some of those events have been to make the world
health organization’s international classification of functioning disability and health and the
World Report on Disability more widely known and used in the United States. We’ve also
held conferences on cultural competency in rehabilitation as well as developing curricula
and educational resources on this topic. But today’s focus will be on the CIRRIE database
of International Rehabilitation Research. Now, why is access to international research
so important? Well, a report from the National Science Board provides an answer to that question.
New ideas and discoveries are emerging from all over the world, and the balance of science
and engineering expertise is shifting among countries. Many research problems require
scientists and engineers in different countries to work together. Collaborative activities and international
partnerships provide increasingly important means of keeping abreast of new insights and
discoveries. Scientific leadership requires access to people, knowledge, and infrastructure
wherever they are found. Historically in researchers in the United States have not had ready access
to international research in the field of rehabilitation. Some of the reasons for this
are partly because of distance and expense. U.S. researchers have given priority to professional
associations in the United States, attending their conferences and reading their journals.
Collaborations were typically with other researchers in the United States. As a result the references
in articles published in the US usually did not include many references to research conducted
in other countries. That is now changing. An analysis that CIRRIE
conducted of a sample of US rehabilitation journals found that there has been a steady
increase over the past decade in a number of international references. The inclusion of more international research
and systematic reviews is now seen as critical and in fact its exclusion has been identified
as a source of bias in some reviews. The CIRRIE database is multidisciplinary,
cutting across all the areas and domains of rehabilitation not just the medical aspects
of rehabilitation. Now if one were to search in all the domains of rehabilitation, one
would need to consult several different databases, each one with a different focus. For example,
medical literature, engineering, architecture, and social science. One would also need to
identify within each of them those citations that are rehabilitation related. CIRRIE by
extracting rehabilitation citations from these other databases and excluding the nonrehabilitation
citations has created a onestop shopping Center for Rehabilitation Research. The CIRRIE database
uses the NARIC thesaurus with some adaptations to make it appropriate for international literature.
For example where the NARIC thesaurus uses a term such as the ADA, the Americans with
Disabilities Act, we would adapt that then and use a more general term for example legislation.
But the use of the same thesaurus makes the two databases quite compatible in their structure
and search features. The CIRRIE database includes research from 1990 to the present and currently
contains 147,000 citations, a number that is constantly growing. Most of the citations
have abstracts in English and some have links to the full text of the article. The database is searchable by a number of
parameters, including country, subject, author, year, and the ICF codes. The ICF, the international
classification of functioning disability and health is an international classification
of disability that contains terms or codes for disability in all of its types and manifestations. What is the relationship of the CIRRIE database
to other databases? There are several things that should be pointed out. First, the CIRRIE
database includes citations relevant to rehabilitation that are found in less specific databases
such as Medline and CINHL. In fact those databases are one of the major sources for citations
that go into the CIRRIE database. However we also include a number of international
journals that are not indexed in those databases and as a result, many of the citations in
CIRRIE are not found in other databases. One major characteristic of the CIRRIE database
is that it includes only research conducted in other countries outside the United States.
Thus it complements the REHABDATA database that focuses primarily on research conducted
in the United States. There’s an issue of FOCUS published by the
NCDDR that discusses in some detail of the use of the CIRRIE database and systematic
reviews. This issue of FOCUS is on the NCDDR website and might be useful to compliment
this webcast. The second part of this presentation will
be done by Dan Conley. Dan is the person who designed the current version of the database
and is responsible for maintaining it. He is thus in an ideal position to explain the
details of how to use it. Dan?>>DAN CONLEY: Thank you. This is the main
search form of the CIRRIE database. We’ve tried to keep it as simple as possible while
still allowing you to do more advanced searches easily. When it first loads you’re given a
query box defaulting to a title key word search. You can also search by subject heading by
author or by journal. We’re starting with the title queue word search here for diabetic
foot. You can limit the results you get by the geographic area the research was conducted,
whether the results are in English or nonEnglish and by the year the article is published but
we’re leaving those on the default settings for right now. Slide 12: Here are the search results for
diabetic foot. There are 232 results. You can view the brief citations here or follow
links provided for the full record of each citation. Slide 13 is the record view for a citation.
In addition to the information from the citation that was on the results page, there are links
to detailed information about the authors, journal, and subject headings as well as the
abstract if there is one and the link to the full text, if available. Now we’re on slide 14. We’re going to do an
advanced search. To begin with I’ve limited the results to only articles from the United
Kingdom and from 2008 to the present. I’ve also changed diabetic foot to diabetes. Here I’ve highlighted the dropdown menu to
change which field of a record is searched. I’m going to change from a title key word
search to a subjectheading search. Now that the field has been changed to subject,
let’s add another search term by going to the add another term link. Now we’re searching for the subject heading
diabetes, and the subject heading limbs. They’re combined with the Boolean AND but you could
also combine them with OR. Using the more advanced search has narrowed
the results down to 20, which should be much more relevant for our purposes. Slide 19 is the CIRRIE thesaurus. The thesaurus
index has information on what it is and how to use it and also allows you to browse or
search the entries. Let’s look at the entries under D. The D entry shows all the subject headings
that begin with that letter. It shows the scope note and related terms. And each term
is linked to an individual page with more information about the subject. This is the top of the thesaurus entry for
dementia. It shows mostly the same information as the main listing, but in an easier to read
and more explained format. Depending on the subject heading it will also include the broader
terms, narrower terms, related items, and which nonauthorized subject headings to use
it for. Slide 23: The bottom of the entry has more
information. The five authors and journals with the highest number of articles in the
CIRRIE database. There’s another way to access the most prolific authors on subjects that
we’ll get into a little later. Back at the top of the subject heading entry,
we can also do a search of the database by subject heading. You can follow the link at the top of every
subject heading page to do the search. There are over 5,000 results for a subject
search for dementia. It’s very broad, but if you’re looking for a general search of
a subject, this is an easy way to do it. �
At slide 27, we’re back in the thesaurus index. We can also search for subject headings that
are found in the thesaurus. You can follow the search the thesaurus link
to bring up
the form. Let’s do a search for “employment.” Here are the results. Subjects will be returned
if they have the search term in their name or in the scope note. Client satisfaction
here is returned because it includes the fulfillment of employment. There’s also competitive employment,
counselor employment, and other terms. Slide 31 is the guide to searching. It explains
how to search the database and use its other features. If you’re using the database and
need help remembering how to do something after this webcast, you can consult the guide. Slide 32 has the newest feature of the CIRRIE
database, the ability to save and download citations. As long as you’re using a modern browser and
have Java Script enabled, there will be check boxes next to each article on a database search.
If you don’t see them you should either enable Java Script or upgrade to a more current version
of Google chrome, fire fox or internet explorer. When you check an article, it will be saved
for download. When you have citations saved, there will
be an extra link at the bottom of the database sidebar allowing you to view and download
the citations. If you don’t see it, refresh the page that you’re on. This page lets you view the citations you’ve
saved and download them to your computer. You can change the format they’re downloaded
in. It defaults to end note format with the CIRRIE end note filter provided along with
instructions on how to use it. Currently the only options to download are EndNote and plain
text but if there’s a format you’d like added, please contact me and I’ll do my best to implement
it.The citations you mark for saving will not go away unless you delete them. You don’t
need to worry about a session timing out. They’re specific to the browser you use on
one computer however, so citations saved on a laptop will not be saved on a desktop and
vice versa. You don’t need to sign up for an account with CIRRIE either. All users have
full access to downloading citations. If you would like to remove some articles
from your saved list, they are displayed underneath the download form and you can uncheck them.
If you would like to start over after downloading citations you can use at the link at the top
to delete all the ones you’ve currently saved. Now we’re on slide 37, and are going to look
at our annotated bibliographies. The top cited articles are a series of bibliographies
that list the 25 international articles that have been most cited by other articles as
calculated by the web of science database. This is the top of the bibliography for Assistive
Technology. It gives the name, the date it was searched in web of science and the listing
of citations with annotations of the article provided underneath. We’re always looking
to add new bibliographies so if there’s a subject you’d like to see, please let us know. Now we’re on slide 40. It’s possible to search
the CIRRIE database through our CIRRIE/ICF crosswalk. Following the link below the database form
will let you access the crosswalk. The CIRRIE/ICF crosswalk matches two level
ICF codes with subject headings from the CIRRIE database. You can search for an ICF code, if you know
what you’re looking for. Or you can browse the ICF classifications. An ICF code will list all CIRRIE subject headings
that have been mapped to it. You can combine them with the Boolean AND or OR and optionally
add a condition or special population with AND. I’ve combined psychosocial factors with
depression adding in the condition alcoholism. This search gives four results. Adding together
so many subjects can provide few or no results, but it can also give a focused set of citations. Now we’re on slide 47. CIRRIE also has a subdatabase
of Universal Design articles. It’s identical in structure to the main CIRRIE
database but includes some citations that would be otherwise out of scope. Much of the
research being done on Universal Design is published outside of journal articles so this
database includes other types of citations and also includes research conducted inside
the United States. You can search the Universal Design database
the same way you would the main CIRRIE database but you can also browse a list of all articles. You can browse the citations by type, like
book, conference report or journal article, or by subject heading. These subject headings
are unique to the Universal Design database, and don’t appear in the CIRRIE thesaurus. Finally, on slide 51, we’re going to look
at the Subject Specialists. The Subject Specialists is presented in an abridged version on the
subject heading information page we saw earlier. This provides you a more complete list of
authors who have published extensively in the CIRRIE database. You can use the Subject Specialists resource
to find the authors who have published the most articles on a subject heading in the
database. You can use the results to identify collaborators, for instance, for research
or for systematic reviews. You choose a subject heading from the drop down menu and select
whether you only want citations from the past five years counted and if you only want authors
with contact information in the database. The results page lists the authors, how many
articles in the database they’ve written, and links to their author page and a search
of the database for their articles. This is the same search, but only including
articles published in the past five years. This has been an overview of the CIRRIE database.
Thank you, and please let us know if you have any comments or questions.>>JOANN STARKS: Thank you very much, Dan.
I want to thank both of you very much for today’s presentation, and thank you to everyone
for participating in the webcast this afternoon. Before we move on, I wanted to ask you, Dr.
Stone, if you have anything else you would like to add at this time?>>JOHN STONE: Yes, Joann. I just thought
I would add that we know that many people are using the CIRRIE database. We attract
the visitors and there’s roughly 30,000 visitors to the database per month. However, we don’t
get much information about what their experience was like. We do conduct usability testing
periodically especially when new features are introduced, but outside of that, we don’t
get as much information as we would like from people who are actually using the database,
and so therefore I would encourage the listeners to today’s webcast, or the participants, to
provide us with some feedback about what their experience was like, whether they had difficulties
with any of the features, and perhaps suggestions for making� improving the usability even
more. And basically, that’s just an additional point that I would add to the remarks that
were already made today.>>JOANN STARKS: Okay. Well, thank you very
much. I would like to remind and encourage everyone
to fill out the brief evaluation form to help us for planning future events. It just takes
a minute and you can do it right now before we sign off. Just click on the direct link
to the Evaluation Form that is found on the last PowerPoint slide. Everyone who registered
for the webcast will also receive a followup email with a link to the evaluation form. In the next few days, the archived audio/video
file and a written transcript of the webcast will be available and posted on the webcast
page. We will send email to all who preregistered when these items are ready for review. I want to thank our presenters for their time
and valuable information about the CIRRIE project and its international research database.
We will be working with them over the next five years of the KTDRR project to help researchers
to connect with international disability and rehabilitation researchers and to more easily
find relevant research results. Finally, I want to thank the National Institute
on Disability and Rehabilitation Research that provided the funding for the webcast.
Once again, on behalf of our presenters and the CIRRIE staff, and myself and the rest
of the KTDRR staff, thank you and good afternoon.

Glenn Chapman

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